Sign-up for Novellia
Create your free online account that allows you to see your medical history all in one place.
Eligibility Criteria
All of the following must apply in order to participate.
You must:
Be 18 years of age or older.
Have been diagnosed with multifocal motor neuropathy (MMN) by a physician
Be a U.S. resident
Be able to connect your medical records to your Novellia portal.
Consent to sharing your medical records for the duration of the registry (minimum 9 months)
If you aren’t sure if you meet the above criteria or have other questions about the registry, please contact us: MMNInsights@novellia.com
How it Works
We make it easy and rewarding to contribute your insights.
Connect your medical records
Connect your medical portals, and Novellia automatically organizes all of your medical history in one place. Once you connect your records and your MMN diagnosis is confirmed, you’ll automatically be included in the study. Your data is always kept secure and anonymous.
Participate in future research
You may be eligible to complete surveys and participate in additional research. If you participate in additional research, you’ll earn a gift card for each survey you complete.
Why Join the MMN Insights Registry?
New treatments are in development for MMN - your experience can help inform how these new treatments are used once they’re approved.
Shape the future of MMN treatment
Real-world data on your IVIg treatment, including how your dosing or frequency of infusions change, and any side effects you experience fills critical gaps that clinical trials alone cannot. Your story helps researchers understand what living with MMN is actually like
Take control of your health with Novellia
Use Novellia to track and understand your own health data while contributing to research.
Get rewarded for your contributions
Receive a gift card for enrolling + connecting your records.
Each Story Makes an Impact
Your insights will shape the future of breast cancer research.
"Meaningful medical advancement relies on real patients. When researchers can connect directly with the people navigating daily life with rare conditions like multifocal motor neuropathy, it helps shape better treatments and care."
.avif)
Shashi Shankar
Novellia CEO & Co-Founder
About Novellia
A powerful patient portal that empowers people living with complex medical conditions.
Easily see your doctor visits, labs, and medications.
New medical records are automatically added from connected portals.
Add your own notes to make sure no key details get lost.
Access appointment guides to help you prepare for doctor visits.
Your data is always kept secure and private.
Frequently Asked Questions
Participation is easy and anonymous—learn more below.
Do I need to go somewhere in person to participate in the study?
No, you can connect to the Novellia portal from the comfort of home.
How much time should I plan to spend on participating in the study?
Onboarding and connecting your records takes less than 10 minutes. If invited to a focus-group interview, sessions are typically 30-45 minutes and compensated with a gift card.
How is my data protected?
Your privacy is our top priority. Novella keeps your personal health data secure in our encrypted, HIPPA-compliant app and your survey responses are always anonymous.
What will researchers learn from this registry?
Researchers will look to understand current treatments for patients with MMN and what their IVIg dosing and infusion schedule looks like. The goal is to understand what day-to-day life looks like for people living with MMN and how well their treatment is working over time.